What I learned this week...

All the calamities of the world can't scale the walls of my indifference.
But the tears of my wife, wash the walls away like waves on a sandcastle.
The generosity of the body of Christ breaks the gates like a strong army.
I am left humbled, knowing I am not as strong nor hard as I thought.

I reserve the right to delete this at any time...read fast.

Cadenne Update Cross Posting

For more info and back story see the McDaris Family Blog.

It is with much thanksgiving and praise to the Lord that we write this update for you today. As you have seen, Cadenne is now ECMO-free! The doctors are all thrilled with her quick progress. As sick as she was when she arrived here at Children's, none of them thought she would be off this soon. We know that God is the Great Physician, and has had his healing hand on her from the beginning. It was so wonderful to see that massive cart being rolled away... AWAY from our baby! What a blessing!



Cadenne did extremely well with her first day off of ECMO. Her blood gases have been great, and her oxygen levels have also been good. She spent some of the day "riding the machine," which is basically her body letting the ventilator take over for her while she is asleep. Other parts of the day she was taking breaths in addition to what the machine was doing for her. Surgeons were watching her closely all day and have made the decision to go ahead with her repair surgery tomorrow. She is an add-on case, and has 4 other surgeries on the schedule before her, so she likely won't go in until late morning or early afternoon.

Initially, the surgeon we spoke to said they would try doing the surgery orthoscopically, where they make tiny incisions in discrete places and do the repair in a way that is minimally invasive, with the understanding that they may have to go in and do a larger incision if that didn't work. Later in the day, after the surgeons had a pow-wow, they decided that it was best for Cadenne just to do the bigger incision. It is a MUCH shorter surgery, and with the level of pulmonary hypertension that she had, they think it is likely that they'll end up with the bigger incision anyway. They believe the hole is quite large and that a patch will be needed. (rather than just stitching the diaphragm up.)

Please pray that the Lord would guide the surgeons' hands, that the hole is easier to repair than they think it will be, and that Cadenne will recover quickly. Since they're going with the larger incision, she is likely to be in a lot more pain. Please pray that her pain would be managed well. Lastly, pray for the function of her lungs... that the surgery will help them to inflate even more. She is still experiencing some pulmonary hypertension, so hopefully after the surgery, that will ease up a bit. And most importantly, pray that our God would be made famous through all of this, that it will be clear that He deserves our worship.

We know that Cadenne is in good hands. The surgeons are top notch. We are confident that this surgery--the third in nine days--will be good for her. We are by no means out of the woods yet, but this is the next big hurdle that needs to be jumped!

Earlier today the respiratory therapist was changing the tape around Cadenne's ventilator and told me to get the camera out so that I could get a picture of (almost) her whole face. I jumped at that chance! Isn't she pretty?

Pics of the New Baby

Here are pictures of my brand new baby.


This is her room. Yes, all the equipment is for her.


She has CDH and she is on an ECMO (heart/lung bypass).
There are only four hospitals in California that offer ECMO.


Pray. For more information click here. Soli Deo Gloria.