Cadenne's First Year: Retrospective

A look at Cadenne's first year in pictures and video. Thanks to Hanssie Trainor of Hanssie Trainor Photography for the birthday cake w/pink frosting and pink, white and gray sweater photos! Hire her! Thanks to the staff at CHLA and our family and friends. Praise God, this season of our life is for His glory alone, with out whom it would have been a terror instead of a blessing.

Now Thats Dedication...

A couple of weeks ago we dedicated our two youngest kids, Zachary and Cadenne. Here is the audio.

Cadenne Updates

To day there were four updates. Lots of good news.

Update Number One. Update Number Two. Update Number Three. Update Number Four

Cadenne Update Cross Posting

For more info and back story see the McDaris Family Blog.

It is with much thanksgiving and praise to the Lord that we write this update for you today. As you have seen, Cadenne is now ECMO-free! The doctors are all thrilled with her quick progress. As sick as she was when she arrived here at Children's, none of them thought she would be off this soon. We know that God is the Great Physician, and has had his healing hand on her from the beginning. It was so wonderful to see that massive cart being rolled away... AWAY from our baby! What a blessing!



Cadenne did extremely well with her first day off of ECMO. Her blood gases have been great, and her oxygen levels have also been good. She spent some of the day "riding the machine," which is basically her body letting the ventilator take over for her while she is asleep. Other parts of the day she was taking breaths in addition to what the machine was doing for her. Surgeons were watching her closely all day and have made the decision to go ahead with her repair surgery tomorrow. She is an add-on case, and has 4 other surgeries on the schedule before her, so she likely won't go in until late morning or early afternoon.

Initially, the surgeon we spoke to said they would try doing the surgery orthoscopically, where they make tiny incisions in discrete places and do the repair in a way that is minimally invasive, with the understanding that they may have to go in and do a larger incision if that didn't work. Later in the day, after the surgeons had a pow-wow, they decided that it was best for Cadenne just to do the bigger incision. It is a MUCH shorter surgery, and with the level of pulmonary hypertension that she had, they think it is likely that they'll end up with the bigger incision anyway. They believe the hole is quite large and that a patch will be needed. (rather than just stitching the diaphragm up.)

Please pray that the Lord would guide the surgeons' hands, that the hole is easier to repair than they think it will be, and that Cadenne will recover quickly. Since they're going with the larger incision, she is likely to be in a lot more pain. Please pray that her pain would be managed well. Lastly, pray for the function of her lungs... that the surgery will help them to inflate even more. She is still experiencing some pulmonary hypertension, so hopefully after the surgery, that will ease up a bit. And most importantly, pray that our God would be made famous through all of this, that it will be clear that He deserves our worship.

We know that Cadenne is in good hands. The surgeons are top notch. We are confident that this surgery--the third in nine days--will be good for her. We are by no means out of the woods yet, but this is the next big hurdle that needs to be jumped!

Earlier today the respiratory therapist was changing the tape around Cadenne's ventilator and told me to get the camera out so that I could get a picture of (almost) her whole face. I jumped at that chance! Isn't she pretty?

Pics of the New Baby

Here are pictures of my brand new baby.


This is her room. Yes, all the equipment is for her.


She has CDH and she is on an ECMO (heart/lung bypass).
There are only four hospitals in California that offer ECMO.


Pray. For more information click here. Soli Deo Gloria.

You have not...

From the beginning of our difficulties with this pregnancy we have wanted the help and prayers of our brothers and sisters in Christ. I want the people I worship with involved in my life. I am blessed with a healthy church family. We have often been asked by our church family to give updates on Cadenne Hope. That is a relatively easy request to fulfill. But at this past concert of prayer I came across a request that was not so easy, One of the elders simply asked, "How are you doing?" I answered, "Tired." I went on to mention a couple of reasons why, none of which seemed adequate. Now that I have been able to reflect upon it a little longer, I think I have a better answer. I have been anxious. And sinfully so.

I continue to be anxious even though I know Matt. 6:25-34 tells me I shouldn't be anxious. I know that my God is the God of Israel, the God that provided even after their sinful unbelief in the wilderness. He was still faithful to His people. How often will I fret about material provisions instead of seeking His righteousness? (Philippians 4:6) He has always proven Himself faithful to His own. In this, my "wilderness experience", I find myself tempted to side with the ten spies, those that thought the taking of the promised land was beyond their abilities. They were right. Joshua and Caleb say as much in Num 14:5-10: "the Lord is with us".

In every sense is not that enough? If God is for me, who can be against me? I can see how He has cared for both the birds and George Muller, surely I fall some where between those two. I wish to live out the trust I profess in God, that His love would cast out this fear in particular.

Sometimes Blessings Stink

Therefore, since we have been justified by faith, we have peace with God through our Lord Jesus Christ. Through him we have also obtained access by faith into this grace in which we stand, and we rejoice in hope of the glory of God. More than that, we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God's love has been poured into our hearts through the Holy Spirit who has been given to us. Romans 5:1-5

If you read the Cadenne Hope Updates, you will know where this post comes from.

As for how this post relates to the post below, this would be a post on subject B) Stop pretending that you're OK. We know differently.

It seems that God has chosen to have me move beyond theological theories, and into the realm of living out the hope He has given to me. While we all understand that God is knitting our little girl together in Tricia's womb, we don't necessarily understand why He decided to skip a knit one, pearl two. I would like to think it is for the same reason the man in John 9:1-3 was born blind: to reveal God's glory.

The theory I had been formulating was a simple one. Given that we are sinners in a fallen world, pain is good. To quote Westley "Life is pain, Highness. Anyone who says differently is selling something." But why would I argue that pain is good? Two reasons; 1) Pain as a diagnostic tool indicates that something is wrong and needs to change. Thomas Covenant longs for pain. This leads to reason 2) Pain also indicates life (that is you're not dead yet), which means there is time to correct the condition that is causing the pain.

I realize I have not suffered to the same extent as the great saints of the faith. As a result I do not have the endurance nor the character of a great man of God. For now I will rejoice in the suffering that my Lord has allotted me, content with the hope He is pouring out for His glory.

Post Script
I have come to understand a third reason that pain is good. It gives an opportunity for the body of Christ to be the arms of God that hold and comfort those that suffer.

Not so Good News

My wife and I had some bad news this week. Tricia is 25 weeks pregnant and some complications were found. Read the updates here. If you would like to be on the e-mail prayer list, email me here.

I will post as I often as I am able. I know you understand.

Christian Sees Those Ahead...

Sunday nights are generally when my wife and I meet with our small group. We normally talk about that day's sermon. We are presently in the middle of a series on gender, sort of along the lines of Restoring Biblical Manhood and Womanhood.

Near the end of last Sunday night's meeting, I brought up a survey that I read that says a lot of men see love and respect as synonymous terms. Most women, on the other hand, see these terms as very distinct from each other.

The discussion that followed seemed to reinforce that very idea. Early on, our group leader, Mr. Jones, said something to the effect of, "I don't think you can have love without respect." Later on he asked the question, "So is it possible to love someone you don't respect?" He did so in his usual manner, which is to say in an open and honest manner, lacking any tone of condescension or disapproval of the notion.

Immediately the lovely Mrs. Jones answered something to the effect of, "Yes, you can love someone without respecting them. You won't follow someone you don't respect, but you can still love them." Her response had no hint of trepidation or sarcasm. It was truly uninhibited, (yet) loving and respectful. Mr. Jones nodded an understanding nod.

This exchange was a beautiful example of a Husband moving beyond his own perspective and including the perspective of his Bride. This exchange gave me the impression that Mr. Jones has been loving his wife as Christ loves the Church. It was natural and flowing, giving the impression that this is the normal course of their conversations.

Mr. Jones' willingness to question his own paradigm in an effort to understand how others think and feel was inspirational to me. I hope to one day to be more like him.

This post was posted with the permission of Mr. Jones. Yes, that is his real name.

Texas

A couple of weeks ago, my wife and I went to the great state of Texas for a business meeting. We arrived a day early so we could have more time to sightsee and hang out. We stayed at the Gaylord Texan in Grapevine. Nice place, really. The business part of the trip was as expected with the usual meetings on how to sell more effectively, and get some deals on what I sell.

Tricia was able to meet some of her friends from Texas. The food was good, the people were nice and now I know that "all y'all" is the plural of "y'all".

My wife made a funny.

Here it is. And while you're there check out what my one year boy old can do.

Respectful

OK guys and gals, let's have a quick run-down of why we should be respectful. Reason number one: Scripture says so. Do we need another reason? No, we don't. But here is number two:
Just as a husband giving lingerie to his wife is gift to himself, a wife giving respect is giving herself a gift.

As we prepare to give respect, we should know something of what we are giving. In the context of Eph 5:33, the word translated respect in the ESV is more often translated as some form of the word fear in the rest of the New Testament. This word is also very similar to the word translated as reverence (fear in the NASB) in Eph 5:21.

We can see that what we are giving is closely tied to fear. That your husband uses his strength to give you bear hugs in love rather than a full nelson in anger should be proof that he is at least somewhat respectable. Wives may want to remember this as they show respect. Your respect should be unconditional in Christ, just as you expect his love for you to be unconditional.

"But what are some ways I might show my husband respect?" you might be asking. Just as different guys feel disrespected by different things, so also they see respect in different ways.

Let me start with rule number one: Don't fake it. Empty flattery doesn't do anybody any good. I mean really, have you seen American Idol Laugh Out Loud night?

Second, watch how he shows respect. Remember, respect is love. Therefore, like a "love language" the way he likes to give is most likely the way he likes to get. Does he use titles such as "my Pastor" or "my wife" instead of names? Then try "My husband is wonderful." Remember rule one, of course.

Third, and maybe the hardest one, do Eph 5:22-24.

Happy 7th Birthday, Karissa.

Karissa is the oldest of my three kids. In honor of her B-day today my lovely bride Tricia put together this little video history. We have two more B-days over the next few weeks. So figure this is one of three.